
NRC/GT is funded under the Jacob K. Javits Gifted and Talented Students Program Act
Note to Readers...
Gifted Students With Physical Disabilities
The Importance of the Classroom Context
Appendices
Two participants were located who met the selection criteria. One student was placed in a self-contained gifted program at the elementary level; the other was enrolled in regular and college preparatory classes at a comprehensive high school. Data collection occurred over a three-year time span, and employed these research methods: participant observation, interviewing, document analysis, audiotaping, and videotaping. Data were analyzed using analytic induction, constant comparison, open coding, axial coding, selective coding, diagramming, and cross-case analysis.
The students demonstrated the following characteristics of giftedness: advanced academic abilities (especially mathematical and verbal skills), broad base of knowledge, quickness of learning and recall, sophisticated sense of humor, curiosity, insight, maturity (shown through high motivation, goal orientation, determination, patience, and recognition of their own limitations), desire for independence, and use of intellectual skills to cope with the disability. Instructional variables conducive to the development of these skills included willingness of the teachers to accommodate for their disabilities, mainstreaming with nondisabled students, individualization and opportunities for student choice, hands-on experiences, development of thinking skills, simulation, thematic instruction, and high-level discussion.
Four assertions emerged from the cross-case analysis. In brief, these related to: (1) the difficulty in expressing and recognizing indicators of giftedness; (2) the differential impact of classroom atmosphere, structure, and instructional activities; (3) integration into regular classrooms; and (4) barriers which must be overcome in order for these students to meet their goals. Implications for educators were delineated in the hope that the abilities of more of our students may be recognized and nurtured.
Introduction
My Song
Poems are nicer than letters
News in January
Cold stars all around.
Pilgrims in the Night
Domes of the cathedral gleam in the moonlight
Lost Seeds
Poems are meant to be pomegranates
Christmas Poem
Santa Claus brings joy to girls and boys.
Yet, there has long been recognition of those rare individuals who have attained eminence in spite of seemingly insurmountable obstacles. Helen Keller, Beethoven, Franklin Roosevelt, Christy Brown, Einstein, and Braille are well-known examples. Of the 400 persons studied in the book Cradles of Eminence, 100 were disabled in some way (Goertzel & Goertzel, 1962).
Mrs. Zastrow draws the scales on the board to show the children how to read them.
She tells Alison, Lew, and Jan to pay attention.
On the Celsius scale, there are numbers like 10, 20, 30, with 10 marks between, the middle one slightly longereach mark stands for one degree. Michelle points out that this is just like a clock. (Fieldnotes, 10/4/90, pp. 1-2)
Table 1
Intellectual Abilities of Jan and Brad
Jan's teachers called his choice of language "extraordinary," especially for an eight-year-old! The selection of the vocabulary and the use of words to create mental images is certainly sophisticated.
Jan is doing a multiplication page. Here is a list of the problems and a record of what Jan points to:
Jan was also adept at using deductive and strategic thinking, particularly in playing learning games in the classroom. One additional event that represents Jan's deductive thinking ability is presented below:
The report card reads:
The second of Jan's writing samples which shows insight is a poem, written the night before Jan's seventh birthday:
Jan yearns for others to listen for his song (his inner self) and not his speech (the outward manifestation). This recognition that the outward appearance and the inner truth differ is the essence of insight. He appears to understand himself and his situation very well.
Mrs. Frome's nose causes her to make strange noises. When she blows her nose, my nose runs, too. Sometimes when she sounds, dogs howl and the traffic stops. After the gust is over, the streetlights come on before the dust has settled. . . . (Fieldnotes, 10/14/91, p. 1)
I don't know how soon it's going to get to the point where [Jan] can do these things independently, but it's going to happen because he's not going to quit till it does. (Interview, Jan's first grade teacher, 7/2/92, p. 4)
[Jan] is determined to get [his work] done and to do just what everybody else does. For 6 years old I think it's incredible. (Interview, Jenny, 3/22/90, p. 4)
Then Jenny has Jan do the problem on his calculator. He pushes the keys down, taking several tries to do each one. He just about gets to the key and touches it, but not hard enough. Then his hand reflexes backward and he has to bring it into position again. . . . Jan makes lots of sweeping motions trying to clear the calculator. He tries a minimum of 3 times before getting it. (Fieldnotes, 2/5/92, pp. 7-8)
We have one day [at camp] where we do like a marathon type thing at this course, and the children do it any way they can. If they have a walker, they do it that way; if they can push themselves, they push themselves. Well, Brad pulled himself the whole course. . . . We tied bandanas in a circle. Someone held one end, he grabbed the other and would pull. And he'd pull, you'd step back, he'd pull again. He pulled his wheelchair the whole way. . . . It had to have taken him an hour and a half to do it. (Interview, Brad's camp counselor, 5/27/92, p. 6)
[Brad's math teacher] saw Brad's determination in a slightly different way:
He has been sick. This made me really think about his determination because I thought what does he really have to live for? He can't talk. He can't walk. Can't play and he has to sit and watch kids take those things for granted. He has to watch them talk. He has to watch them walk. He has to watch them play basketball, but yet he has never given up. (Interview, 5/14/92, p. 3)
[Jan had] incredible patience for what he had to overcome. I didn't ever really see frustration in him. (Interview, Jan's first grade teacher, 7/2/92, p. 7)
I know that when I first went in there [Brad] had to be extremely patient because he would show me his numbers and then I would have to look on his chart and then I would have to get used to how he and Pam did things. (Interview, Brad's classmate, 5/14/92, p. 4)
[When we make the hummingbird model] I will have him measure. It's all of three and a half inches or so. He will measure the line. Then we'll cut an outline. I usually do thathe usually allows me. Then we'll cut. And he doesn't seem to mind if I have to do the outline work, as long as he gets to show you how long it needs to be andlike his bill, I'll ask how long and do you want it curved or do you want it straight? (Interview, Jenny, 3/22/90, p. 2)
Certain instructional activities were especially beneficial for Jan:
Well he reads very quickly and comprehends very well. I think he probably got far more information when the assignment was using some kind of reference book or something. . . . The kinds of hands-on things he particularly enjoyed because it was something new and different . . . and he liked things where he was in the midst of the kids. . . . (Interview, First grade teacher, 7/2/92, p. 3)
I do think the writingI think the writing gives him a chance to unlock everything he's held inside, and he can . . . when he writes stories it's like a little section of his mind opens up and he just writes everything. . . . I think the ones where we go out on a field trip, when we went looking for crinoids and all that, where he can put his hands in and do just, just get out there and do what everybody else has done, get dirty, you know, get the sand and it doesn't make any difference that he's got dirt on, because everybody else is that way. (Interview, Jenny, 7/15/92, pp. 2-3)
My Song
Poems are nicer than letters
News in January
Cold stars all around.
Pilgrims in the Night
Domes of the cathedral gleam in the moonlight
Lost Seeds
Poems are meant to be pomegranates
Christmas Poem
Santa Claus brings joy to girls and boys.
ABSTRACT
This study explored the experiences of gifted students who have cerebral palsy and are not able to communicate with speech. Qualitative cross-case methodology was employed to investigate the following questions: In what ways do these students indicate their intellectual abilities? What instructional strategies or techniques are especially beneficial in developing these abilities?
EXECUTIVE SUMMARY
Gifted Students With Physical Disabilities
Identification
Providing Appropriate Educational Experiences
Summary of Research Methods
The Participants
Results
Expression of Cognitive Abilities
Effects of Classroom Experiences on Intellectual Development
Conclusion
References
Appendix
Because they have a song in them.
My gift to you is the tune I write here
Listen quietly for my voice
I may quit speaking at any moment
But I can never stop singing
(on the Persian Gulf war)
Today they say we are going to fight far away.
Where have our young soldiers gone to hear the bells?
Please let them pray for peace
Quietly under the desert stars.
Questing pilgrims, hoods pulled low,
Pass my cozy bed.
Where in the wide world
Might they be going?
Like my poems for no one.
Days go by because I just forget
how I felt.
Poems can steal no one's imagination
When they rot on the tree
like unpicked fruit.
Antlers gleam in the light. What a lovely sight.
Night of wonders and delight.
The star of Christmas shines above.
All the world wrapped in love.
Introduction
Cerebral Palsy
A condition, characterized by paralysis, weakness, incoordination, or any other aberration of motor function due to pathology of the motor control centers of the brain. (p. 125)
Cerebral palsy is a noncurable, nonfatal, nonprogressive condition which is amenable to therapy (Sigelman, 1977). In addition to difficulties in coordination and motor control, persons with cerebral palsy might have a number of associated problems: deficits in the oropharyngeal area, speech impairments, lack of control of the eye muscles, visual impairments, hearing impairments, visual perceptual problems, loss of tactile discrimination or proprioceptive sensation, learning problems, cognitive deficits, or seizures (Jones, 1983).
Gifted Students With Physical Disabilities
Providing Appropriate Educational Experiences
Summary of Research Methods
Data Analysis Strategies
Mrs. Zastrow has brought a coffeepot full of hot water. They are going to measure the temperature of the water every 15 minutes from 9:00-10:00. Each pair of students will have two cups made of different materials. They will record their answers on a chart she has run off for them. (She tells me that later that day they will graph the data, and that she hopes that they will have a better idea of what to do than when they tried to graph the information from the cups of ice.)
When the fieldnotes were typed, double spaces were used between units of analysis. (In some cases, further analysis revealed that additional subdivisions were needed, and they were made at that time.) In the above excerpt, the first unit of analysis gave the context for the subsequent instruction. In the second, instruction began. The third unit consisted of a disciplinary statement. The fourth unit revealed an attribute of Michelleshe made a relationship to previous knowledge.
At OT at the hospital last Friday and his therapist had a woman visiting who was borrowing equipment. (Interview, Jan's mother, 9/27/90)
This coding then resulted in or supported previously identified categories of importance to the developing theory.
Phrase
Open coding At OT
Use of abbreviation suggests familiarity. Therapythere is no cure, but there are measures that can ameliorate the situation. at the hospital
The connotation of the condition as an illness. Feelings associated with going to the hospital when one is not sick? last Friday
This was one in a series of instances; therapy is a continuous process. and his therapist
This suggests that there is a long-term relationship with the therapist. He has seen a particular therapist for awhile. had a woman visiting
This was a somewhat unusual instanceworthy of comment. The therapy session is private, yet visitors are allowed. Are observers dehumanizing to the client, or are the clients pleased to be able to "show off"? who was borrowing equipment
This shows a willingness on the therapist's part to sharea desire to help others.
The Participants
Indicators of Giftedness
JAN
BRAD Early reading ability Early reading ability Advanced academic skills Scholastic success Quickness Quickness Sense of humor Sense of humor Maturity Maturity Persistence Motivation Determination Determination Patience Patience Goal orientation Insight Curiosity Ability to adapt Desire for independence Artistic ability
Early Evidence of Ability
Before kindergarten, Brad was able to follow and appropriately respond to conversation among adults. He was not able to interact due to the communication barrier, but he indicated by nonverbal means that he understood.
Mother:
. . . He could understand what the grown-ups were saying and stuff and he might laugh when he was supposed to. It's just he couldn't communicate with them but . . . you could tell by his reactions. (Interview, 10/2/90, p. 8)
It just seemed like the kid was hearing you and seeing you or getting it or chuckling. Or he would laugh at himself in the mirrorhe recognized his face in the mirror when he was at two or three months old. . . . When he was smaller he had a train that goes click, click, click, click, clicka Fisher Price toy or whatever. And we tied a string with a jar ring on the end of it. And again, [we would] hold him in the lap and he would reach over and grab it, and it was clear that he understood cause and effect early on. (Interview, September 27, 1990)
Jan's and Brad's mothers noticed that their sons were alert and able to comprehend at an advanced level what was happening around them. They seemed able to understand cause and effect, without the physical experience of manipulating the environment. Theoretically speaking, they seemed to have skipped Piaget's sensorimotor stage and learned at a very young age to represent events mentally.
Early Reading Ability
One afternoon when I was tired after teaching all day, [I came] home and still had all these hours to be with this little guy. And I just spelled out cow and frog on the [magnetic tray. I said,] "Well, Jan, which animal is green?" And he just jumped up in my arms and went {slaps hand on the table}. And letters flew all over the place but he said "Frog." And [I said,] "O my gosh, Jan, which one says moo?" Cow. A major breakthrough when your child is 3 years old. (Interview, Jan's mother, 9/27/90)
Early reading ability in and of itself is not necessarily indicative of giftedness in the nondisabled population, since young children may be systematically taught to read by parents. However, in these cases, the participants were not taught to read but somehow developed the ability to do so on their own. This is especially unusual when one considers that neither Brad nor Jan could interact independently with books; they did not have the motor skills to hold the book or turn the pages, much less find a book themselves.
Vocabulary
When they came in to talk about the fact that he was going to be in the class and how he had been tested, the idea of multiple choice came up and that he had in fact touched cards on the floor and had been able to move his body enough to do that. . . . What I really did was took the biggest numbers, four inch numbers . . . spread those out in a space where he could reach from one end to the other . . . I didn't have any idea at all if it would work. Then, of course, being an optimist, I just figured ok, if we can do numbers let's see if we can do letters, and I did those before he ever came the first day just because I thought ok, we'll have something we can try, and it worked. I mean, that's all I can say. It worked and it was great and it really was like Christmas everyday because it was the first chance he'd ever had to tell people things. (Interview, 7/2/92, p. 3)
The teacher's optimism created the first bridge for Jan's intellect to cross over and be recognized. As she said, prior to that he had had to settle for multiple choice responses provided by another person. Now he could initiate conversation.
Early in the school year we studied light and shadow. The children read a passage about Thomas Edison taken from Childcraft and responded to a worksheet about the article. One of the questions was "Why did Edison work so hard to get the air out of the light bulb?" The going answer from the class was "so the light bulb would not burn up." Jan's response was "to make the mechanism work better." The last question was "What characteristics do you think a person needs to become a successful inventor?" The going answer was "to have lots of ideas." Jan's response was "to be dedicated." Not only did I no longer worry about Jan's understandingI knew Jenny was not feeding him answers. No adult would suggest words like "mechanism" and "dedicated" to a six-year-old. (Presentation by Jan's first grade teacher, 10/15/91, p. 5)
This incident demonstrates several things. First, Jan was able to spell these sophisticated responses having only had the alphabet board for a few days. He grasped this new way of communicating very quickly. Second, Jan knew how to spell and correctly use complex vocabulary. Third, the teacher had been worried about his understanding and about Jenny "feeding him answers." She still was uncertain about his intellectual ability, even in the face of hard evidence like test results; this incident proved to her that he was indeed very bright.
Writing Ability
Straight away Pa went to the land office to buy a homestead. Ma said eighty dollars was a mite high, but we did get water and some prairie land. After giving thanks, we young uns emptied the wagon. Pa built a lean-to and Ma set a fire. (Fieldnotes, 10/28/91, p. 2)
Jan was able to capture the flavor of his idea of "pioneer talk," reminiscent of Laura Ingalls Wilder. Few writers at his age, or even several years older, would be able to make a dialect sound as natural as this.
Mathematics Ability
His teacher says that he knows lots of things that no one taught him, and she wonders how he learned them. He has pretested in math up to the sixth chapter of the third grade book. He knew how to measure quarts and gallons, how to make change. In fact, the only thing he missed were the > and < signs. He can do the subtraction of four-digit numbers in his head by doing the total answerhe doesn't do it in parts the way the rest of the class does. (Fieldnotes, 3/15/90, p. 11)
I witnessed Jan doing subtraction as well as multiplication holistically, from left to right:
This page has on it a function table, for which Jan must supply the function. Jan indicates the operation in the manner indicated above, then gives the answer as a whole. For example,
This ability to compute mentally so rapidly was extremely unusual for a child of this age. His first grade teacher struggled to explain it:
Jan touches 1 for add, then 3,7,2. He does not figure the answer in columns, but as a whole. (Fieldnotes, 3/15/90, p. 6)
Input Output 245 617
Note that Jan gives his answers from left to right and begins to answer almost instantly. (Fieldnotes, 10/4/90, p. 4)
400 x 7 2,8,0,0 2x34 6,8 3x26 7,8 4x19 7 pause (Jenny: 70 what? or just 70? 6 2x45 9,0 (looking at girls at German table) 4x49 1,9,6
She feels that he is using the distributive propertydoing 40 x 6 + 9 x 6 for example. [The teacher] also mentions that Jan misses the math workbook in the afternoon [due to therapy] and that is fine because he doesn't need it. (Fieldnotes, 10/4/90, p. 5)
The ability to apply this principle, having not been taught how to use it, shows mathematical reasoning ability. His teacher adapted for this mathematical precociousness by allowing him to surge forward at his own pace. In first grade he finished the third grade math book (Fieldnotes, 3/22/90), and in third grade he worked at the fifth grade level (Fieldnotes, 2/5/92). He was still far ahead of his classmates in third grade; while they worked on temperature, measurement, money, subtraction, or multiplication of a three-digit by a one-digit number, Jan was subtracting fractions with unlike denominators.
The teacher was skeptical at first, but then realized by seeing Brad's reactions to Pam's mistakes that he did indeed understand, perhaps better than Pam did. However, the teacher's initial attitude that Pam must be doing the work was not confined to this one teacher, and this interfered with the recognition of Brad's abilities by others.
Teacher:
I could tell by his frustrations when she did not write down what he wanted her to, or when I did not understand his questions, he was really frustrated about it . . . Interviewer:
So at first you wondered how much he was doing and how much the aide was doing, but you decided that he was pretty much doing it then? Teacher:
Yeah, because he would catch mistakes, like if Pam broke the problem down wrong, he would get mad . . . I would call on him in class, when I teach I do a lecture form and ask them what is the next step we would do. I would wait for Brad to spell it out, so I knew that he was spelling it out . . . Pam didn't have time to figure it out any faster than Brad did. (Interview, 5/14/92, pp. 1-2) Analytical Reasoning Ability
You know, his reasoning ability is terrific. . . . This week they're doing a creative thinking page where they're supposed to say, "You know your pet canary is spoiled when . . ." and they're coming up with free responses. Jan's responses are things like, "You know your pet dog is spoiled when you roll over on the floor and he gives you a bone." I mean those are not responses that you normally get from first and second, even first and second grade gifted children. These [responses] are much more. (Interview, 3/22/90, p. 2)
The teacher attributed such responses to reasoning abilityostensibly the capability to mentally reverse roles. It might be argued that this also shows creative ability. Also, compared to the responses of the other children, Jan's were more sophisticated. This is particularly striking when one remembers that this is a class of twenty-four gifted children, and that more than half of the children were one grade level above Jan.
[The students] then play a game with the classroom aide. One student tosses a nerf ball with fringe, saying "Ships a-sailing." The recipient says "Ships arrived." Thrower: "What's your cargo?" Recipient must give an answer following a certain rule. The fourth graders have played this before and know the rule, but the third graders have to try and figure out the rule. Pairs of items such as mud and slush, bananas and watermelons, macaroni and kangaroos work; water and fish, pen and pencil, elephants and peanuts don't. At one point Jan vocalizes. No one pays attention. Jan gets another turn and spells iron and helium. Everyone clapsthat works. He is the first third grader to figure it out. They throw to Jenny at one point. She doesn't get it. At the end of the game, three third graders (Lisa, Amy, and Jan) have figured it out. I haven't. (Fieldnotes, 10/30/91, p. 4)
By observing the recipients' responses Jan was able to deduce the rule more quickly than at least two adults in the room, and before all the other third graders.
Artistic Ability
He said well, if he couldn't make a living with his mind then maybe he could with his head because he does his artwork with his head. (Interview, 5/7/92, p. 2)
Brad himself seemed to recognize that his work was exceptional. Perhaps more amazing than the finished product was the way in which it was created: Brad has a special headgear that attaches the paintbrush to his forehead, and he paints by moving his head. At times Pam moves the canvas so that he can get the desired brush effect. The finished paintings betray none of the labored, jerky movements which created them.
Other Evidence of Academic Abilities
He almost always makes the highest score on any test that I give in social studies or science, which is quite unusual. He usually . . . will score as high or higher than any fourth grade child. I normally grade third and fourth grade . . . I give them the same test because they use the same curriculum, but I grade them on different scales. But he's always at the top of the scale for both classes. I don't think there's ever been a time that he hasn't had the highest score. (Interview, 2/10/92, p. 2)
The teacher's assessment that this is unusual is borne out by Jan's scores on the statewide standardized test, on which Jan scored at the ninety-ninth percentile in every subtest. Observational and "testimonial" evidence is thus substantiated by "objective" measures.
His mother showed me his report card, which corroborated this statement:
Mother:
He's always made the honor roll except in sixth grade once in science he got a C and he was really upset with the teacher, but the next time he got an A+. He really got in gear. (laughs) Interviewer:
Didn't like that C, huh?
(Brad makes a sound)Mother:
A C keeps you off the honor roll and he didn't like that. But otherwise he always made the honor roll. (10/2/90, p. 6)
Brad's high grades in these academic subjects are evidence that his teachers believe that he knows the material and that his performance on homework and tests has been above average. Note that Brad has taken subjects which ordinarily would not be thought possible for a student with his disabilities: art, speech, French, and geometry. Brad does not have the motor control to paint, draw, or do geometric constructions, yet he has done well in both those courses. He cannot speak, yet he attained As in both speech (by composing speeches orally presented for him by others) and French (by spelling out his responses to oral exercises). This indicates his motivation, ability, and his teachers' willingness to modify their expectations for him.
Art A Outstanding performance English B Speech A French 2 A Geometry B+ Physical Science B+ Quickness
Well, when he comes back on the days when we have reading in the afternoon, then the next day he's got a double reading assignment and so he's picking up the afternoon reading assignment in the mornings that he's here, as well as doing all the morning work. And it's still all getting done. (Interview, 3/22/90, p. 4)
Thus, Jan does more work per classroom hour than do the other children. Jan appears to keep pace with his nondisabled classmates. In part this may be because of the extreme rapidity with which Jan reads. On one occasion I timed Jan's reading, and found that he finished two full pages of text in fifteen to twenty seconds. If the page included a picture, it took a little longerabout thirty seconds. He finished the entire book in eight minutes (Fieldnotes, 10/16/91, p. 4).
It seemed that one exposure to a piece of information was all that Jan needed in order to comprehend and remember it. Even if, as Jenny said, his body was undisciplined, his mind was very controlled.
Interviewer:
What about the ability to catch on to things quickly? Jenny:
Oh, I think that happens pretty fast. I think his mindhis muscles may move all the time with uncontrollable urges, but I think the mind works all the time and is very controlled. I think he's on top of most everything. (Interview, 7/15/92, p. 6) Interviewer:
So you think that he catches on to new things quickly. Teacher:
I know he does. I mean, there's just no question that he does. First of all he wouldn't know all the things he does if he didn't catch on to things quickly, 'cause nobody's ever sat down and taught him anything. . . . [These are] all self-learned things. The only instances that I've ever seen that are things like when I sat down one day to show him greater than and less than. You only needed to show him that one timehe knew from then on what you were doing. (Interview, 3/22/90, p. 6)
Pam also thought that Brad learned easily, especially in math and French. One of Brad's classmates expanded to include the idea that Brad was very aware of his surroundings:
Interviewer:
Did it take you a long time to learn the Morse code?
(Brad makes a sound)Mother:
He seemed to pick it up pretty easily. Thank goodness we didn't have to learn it, only him (She laughs). (Interview, 10/2/90, p. 5)
. . . I think . . . one of his strongest [abilities] is he is aware of things. (Interview, 5/14/92, p. 4)
Indeed, if Brad were not alert, he would not learn as easily as he appeared to learnmany repetitions would be needed.
Curiosity
I think he's grown into that more since he's been in these classes. I think he's always been curious, but there wasn't a way to carry it out. (Interview, 7/15/92, p. 7)
As Jenny said, Jan has always been curious but prior to school had no way to carry that out. Since coming to school, however, he has taken every available opportunity to explore things.
[Jan] had gone to the noon interest group [which was] an enrichment type program that kids could sign up for. Each child gets to go to two of them during the year. This one is on gyroscopes, and Jan was very excited about it. The other one (shown on the chart) that Jan chose was rollerskating. I ask how that will work. She chuckled and said that he is happy if he can just watch the other kids. He also signed up for the one she did earlier in the year on calligraphy; even though he knows he'll never be able to do it, he still enjoys watching and wants to know about it. (Interview, 3/22/90, p. 5)
Being curious to the extent of choosing to find out about things one knows one can never do is curious indeed. Curiosity probably had a great deal to do with the amount of knowledge Jan had accumulated without formal teaching. He availed himself of opportunities to learn about things, and he remembered what he learned to a great extent.
Insight
"Frontiers" means things you have not tried before. Like the first time you walk or talk. Any time you attempt something that seems impossible. (Document)
"Frontiers" was to be a theme in social studies that year as they studied state history. Jan applied the word to his own situation in a way that was quite unique; he went beyond the literal meaning of frontiers to a more abstract level, and appeared to see himself as confronting frontiers. To see frontier as an analogy for setting out to do things which are difficult requires abstract reasoning, and to apply that to your situation as a child with a disability requires insight.
At OT at the hospital last Friday and his therapist had a woman visiting who was borrowing equipment. Her job is integrating all the preschools in the county to get handicapped kids into regular preschools. And Jan just seemed to kind of like her and he jumped over to his board and he said, "Karen should visit my school." And Debbie his therapist said, "Oh, why Jan?"just to get him to talk so Karen could see him talk. Obviously we thought "Well, to see me do my stuff." He said, "To see me teach the ostriches." And he was laughing, when he gets tickled he just goes crazy, starts cracking up. "To see me teach the ostriches." We're all laughing. "Jan, are you just being silly? Who are the ostriches in your school? Is this a name you have for somebody?" He jumps on there again and says, "Ostriches are people who don't think handicapped people know anything." Another one of those {gestures} blew us away. . . . That mission already that he has and accepts that. It's just very, very recently that he's begun speaking of himself as a handicapped person. And, of course, that doesn't mean that he's not still trying desperately to walk and talk like everybody else, but somehow he's added to the equation who he is and his handicap, not just, "I'm the little kid who likes cars and likes horses." (Interview, 9/27/90, p. 3)
For Jan to make the analogy between ostriches and people who refuse to see what (to him) is obvious is insightful indeed. He also not only applied it to his own situation, but saw himself as doing something about it. Ellen described another instance of Jan enacting his mission:
She mentions one boy named Nicholas who is placed in a moderately retarded class. He had written to Jan. . . . He said that he was in a "poop-stupid" class. Jan was so upset that he wanted to send the psychologist who had tested him up there to test Nicholas. [His mother] said that Jan felt that that was part of his missionto help other kids. (Fieldnotes, 12/9/91, p. 3)
The magnitude of taking on such a mission and the realization that he could positively impact the lives of others shows a great deal of maturity on Jan's part, as well as insight into the motivations of "ostriches." This is unusual in a child Jan's age, and is further evidence of Jan's intellectual abilities.
Sense of Humor
Jan's use of hyperbole and the images he creates again demonstrate his verbal ability; the humor in the story is self-evident. Jan's mother also indicated that she and Jan use humor to deal with frustration:
We have to turn it into comedy because otherwise we'd want to kill everybody, right? (Interview, 6/1/92, p. 5)
I think, for the most part, he has a sense of humor. I think that's what saves him from taking things so seriously all the time and getting him down. I think he looks to the lighter side of things. I know there have been some situations with his handicap that I've felt uncomfortable around him. I've sort of bent over backwards to avoid it and then I ended up making a fool of myself. He's been able to understand that and laugh it off with me and not make me feel uncomfortable about it. . . . You don't ever think of Brad telling a joke, but yet the sense of humor is to laugh at the same things we all do and to still laugh at some of the things of his handicap that he knows people struggle with. (Interview, Teacher, 5/14/92, p. 4)
Thus, Brad uses his sense of humor to help others to feel less awkward and to minimize the effects of cerebral palsy. He is able to see the humor in a very serious situation. This same ability has been used by Brad and his family to cope with the stress of his illness:
As she reads a phrase "what food choices you have control over" Brad, Pam, and Brad's mother all laugh. Brad's mother brings in Brad's food. I say "speaking of food choices"; they all laugh. (Fieldnotes, 5/8/92, p. 4)
Even though Brad had been very upset that he had to eat through a stomach tube, he was able to see the humor in the situation. Brad also understood and laughed at jokes that his classmates did not understand:
His sixth grade teacher . . . used to say, "He's the only kid that laughs at my jokes." (Interview, Mother, 10/2/90, p. 7)
Brad's understanding of adult humor indicates verbal sophistication and comprehension of abstract ideas.
Maturity
Determination/Persistence
To watch that child [Jan] every day try to get dressed, every day try to, every meal, every bite, try to eat, try to erase that board, try to hold that pencil, and he never quits. (Panel presentation, Jan's mother, 10/15/91, p. 5)
Jan and Brad kept on trying difficult things day after day, never giving up, and in some cases, never succeeding.
Patience
[When I was first learning to work with Jan] he would wait on me. You know, like I'd go "What?" because I didn't know the hand, the control at that time and I wasn't sure what letter he went to. So he'd kind of stop and then he'd do it again so I'd get it right. Just like, "Okay, I'll show you one more time," you know. . . . And if I would say to Jan just a minute, you know, or say I have to go get something, it never bothers him, he just waits and then goes on. (Interview, Jenny, 3/22/90, p. 5)
At relatively young ages, Brad and Jan had developed patience that many adults do not have. This patience helped them to deal with the many frustrations that were concomitants of the disability.
Goal Orientation
He's hoping to work into his math and get . . . a computer set-up where maybe he could work with math in the future. And he's already checking into colleges. He'd like to go to college and work in some kind of an accounting area. And then his artwork . . . one of the things that [he] brought up . . . [was] that possibly if he couldn't use his brain, you know, then maybe he could develop his artwork into a way that he could possibly make a living for himself in the future to contribute to, you know, the household. But he has ambitions that, you know, not just being taken care of, but he'd like to contribute to the family or whoever is taking care of him. (Interview, 5/7/92, p. 9)
Brad has set goals which stretch far into the future, demonstrating his maturity and sense of responsibility. This goal orientation translates into motivation for his classes, which he sees as avenues to his career. Even in preschool, Brad had indicated that he would rather learn than sleep:
[The preschool teacher] just kept working with him and he loved working with her so they went right on together. A lot of the other kids would take naps at school and stuff and he's never been one to sleep, so while the others were taking naps she was working with him. (Interview, Mother, 10/2/90, p. 8)
Brad's math teacher also noticed Brad's motivation:
[E]ven when he feels sick, he wants to be here, like he's going to miss out on something. I think he shines at being motivated, way above and beyond the call of duty. And I think that gets the kids excited. (Interview, 5/14/92, p. 5)
Brad's motivation was so intense that it was contagious. He wanted to be in school even when he was sick. That motivation translated into working hard on assignments:
He'll be working so hard on something and then he'll tell you something about something unrelated. . . . You kinda connect it and think, he wants this so that's why he's putting all this effort into this assignment right herehe sees that there's something in the future that he can use it for which, you know, kids in high school don't do that. They don't put it together. . . . But Brad will say something that you realize that he's connecting this with what it can do for him in the future. (Interview, Pam, 5/7/92, p. 15)
Brad was more serious about his schoolwork than were his classmates because he saw the importance of the lessons for his future. This is more maturity than some college students exhibit.
Jenny asks if it is all right for her to type the last sentence. "Look at me if it is." He doesn't. Jenny says, "You type the first part and I'll type the last part." (Fieldnotes, 5/13/92, p. 9)
Jenny showed awareness that Jan wanted to do as much as he could. Her willingness to allow him that independence is portrayed in the phrase "he usually allows me." Jan certainly had made clear his desire to be independent, to the extent that she felt that he would not "allow" her to do it for him.
Recognition of Limitations
I asked him the other day when we had time in writing lab if he could have three wishes, would he want to tell me anything? And he said he has a fear. Well, I never heard him say he has a fear. And I said, "What do you have a fear of?" And he said, "I have a fear that I won't make all my visions." And so I asked him, "Are you afraid you won't walk?" or whatever. He's worried about the walking. . . . And so we kinda talked about it, I mean I talked to him and he went on the board. He really thinks that he'll walk, but he doesn't know if he'll do it (how'd he put it?) "as well as I should." (Interview, 2/7/92, pp. 3-4)
Jan's desperate hope to walk is tempered by the fear that even if he does, the way he will walk will not meet (his or others') expectations. This realization at age eight when other children are positive that they will be rock stars making a million dollars a day again shows a great deal of maturity. Jan does, however, have fantasies:
The fantasy is there, but he realizes that it is very unlikely to occur, so, in the little word "well," he indicates that he knows the limitations and will settle for a less exciting job.
Interviewer:
What do you want to be when you grow up? Jan:
I want to be a rider of unbroken horses! Well, I would still like to be a professor of math. (Interview, 6/1/92, p. 9)
That was harder to see because of the handicaps, because there was so little that didn't depend on, the things I see in maturity in children are their interactions with other people, how they handle themselves when they have to sit and wait instead of [being] busy doing something, how they respond to new situations, and so little of that Jan has any control over. I certainly didn't see instances of immaturity. I didn't see him bursting into tears at inappropriate times. I didn't see him picking fights with people, which obviously there aren't many ways to do. (Interview, 7/2/92, p. 7)
Here is an instance in which the disability again masks the recognition of the characteristic. The teacher did not see the same types of maturity she saw in other children, but did not think of the types of things mentioned by Jenny as demonstrating maturity. The instances in which maturity were shown were not situations which other children would encounter, thus, the teacher did not equate them with the same trait.
Using the Intellect to Cope With the Disability
Summary of Indicators of Giftedness
The Importance of the Classroom Context
Jan's Classroom Context
[A] set of three or four cards [contained] the possible multiple choice responses to the questions asked. Working on the floor with the choices spread around him and supported by another adult, Jan was able to indicate the response he desired. Jan . . . achieved the 99th percentile for his age. . . . (Panel presentation, 10/15/91)
After the testing, the gifted education screening committee made the final placement decision. They did not have identical information for Jan as for the rest of the students in the class, but in the words of gifted coordinator, the information was "comparable." The screening committee had a difficult decision to make: Here was a child who clearly possessed intellectual skills equal or greater than those of the other children who had been placed in the class, but whose motor skills were at least four years delayed and whose oral speech skills were non-existent. The committee was swayed by the belief of the teacher in whose class Jan would be placed that Jan belonged in the program:
[The teacher] said, "He's got a glint in his eye, and I know." It was just, you know, her gut feeling from the very beginning that if this child needs to be in the program, we put him in the program. And I think that was a very important message from our teaching staff that she was very willing to accept that and just look at the child's needs. . . . That day at the screening committee, you know, it was decided that yes, he would be placed in the program. (Interview transcript, Gifted Coordinator, 3/23/90)
Thus, in what was probably one of the most important decisions in Jan's educational career, the committee was able to look beyond the physical limitations and assume the responsibility of assisting Jan to free his intellect from his dysfunctional body. The committee was not deterred by Jan's inability to complete exactly the same instruments as the other children. Multiple criteria for selection were employed, and the committee was flexible enough to consider alternative ways of expressing giftedness. Key also was the teacher's attitude that if Jan needed the special services provided by the gifted program, then that was what he would have, regardless of the obstacles she would face.
My personal goals for him were to be as much a part of this classroom as it was possible to make it. (Interview, First grade teacher, 3/22/90, p. 1)
Thus, Jan was integrated as fully as possible, truly a part of the class as opposed to apart from it. His teachers considered their instructional modifications for Jan minimal:
Interviewer:
What was the goal that you had for Jan in your class? Third grade teacher:
To be able to take part as muchas normally as possible as [any] other child in the class. That he would be able to participate in the gamut of activities. (Interview, 7/2/92, p. 4)
I anticipated having to modify all kinds of materials in order for him to take part, and we haven't modified, we don't even. . . . I don't even think about the fact that he's in here now when I'm planning things. They just do it. What he can't handle himself physically, Jenny does for him. So his hands are on it and he's doing it. (Interview, First grade teacher, 3/22/90, pp. 1-2)
Jenny made it possible for Jan to participate in virtually all class activities. He did the same workbook pages, read the same selections, participated in the same computer work, took part in discussions and simulations, went on the same field trips, and watched the same films. His work in some areas, like math and spelling, was different not because of his disabilities, but because of his advanced intellectual abilities.
The whole class was already set up in terms of people moving at their own pace, in terms of using lots of different kinds of media, in terms of using lots of different kinds of materials, and so the adaptations that you needed to make for Jan were not noticeable. . . . I think it also softened, or lessened, the perception of the other kids on how different he was, because they were also doing their own thing. . . . [I]n a classroom where everybody was doing the same thing, it would have been very obvious that he couldn't answer the question when it became his turn or that he had to work somewhere else because he couldn't manage in the seat or any of those things that were just kind of normal adaptations went largely unnoticed in the classroom. Also because we were using books at different age levels than the normal first and second grade. Because we were doing things that there was more input maybe, more discussion kinds of things and Jan received input just like any other kid. . . . [H]e was no different than any other child in terms of his intellectual needs and the stimulation and stuff that implies, but I think the fact that the classroom operates that way meant that he didn't stand out as being as different as he was. (Interview, 7/2/92, p. 2)
The teacher and Jenny named several different types of activities, but all were similar in that they either provided new experiencesways to satisfy his curiosity, ways to be part of a groupor allowed him to express himself. Both mentioned hands-on type activities, and this is a type of activity which is often not experienced by children with physical disabilitiesthey have no independent way to gain hands-on experience with the world. Jan concurred with this:
Jan wanted to be able to touch things and have the types of experiences as the other children. However, there were certain curricular modifications which were necessary, and which again set him apart. Some activities (such as handwriting and the regular physical education class) were omitted due to Jan's physical limitations. Jan was occasionally given extra time to complete tasks, and in rare cases he was not included in the group. In general, though, Jan's particular needs were well met in the context of the gifted classroom, and the intellectual challenge and the individualization provided were especially suited to his needs.
Interviewer:
What kind of learning activities help you learn the best? Are these the same ones that you do best on? Jan:
Science experiments because I touch everything; yes. (Interview, 7/92, p. 1) Brad's Classroom Context
Summary of the Importance of the Classroom Context
Implications for Educators
Conclusion
References
Appendix A
Samples of Jan's Poetry
Because they have a song in them.
My gift to you is the tune I write here
Listen quietly for my voice
I may quit speaking at any moment
But I can never stop singing
(on the Persian Gulf war)
Today they say we are going to fight far away.
Where have our young soldiers gone to hear the bells?
Please let them pray for peace
Quietly under the desert stars.
Questing pilgrims, hoods pulled low,
Pass my cozy bed.
Where in the wide world
Might they be going?
Like my poems for no one.
Days go by because I just forget
how I felt.
Poems can steal no one's imagination
When they rot on the tree
like unpicked fruit.
Antlers gleam in the light. What a lovely sight.
Night of wonders and delight.
The star of Christmas shines above.
All the world wrapped in love.